| Polio Survivors
in the
21st Century
"The test of our progress," said Roosevelt, "is not whether we add more to the abundance of those who have much; it is whether we provide enough for those who have too little."
~ President Franklin D. Roosevelt ~
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UPDATE
Please see below, I NEED your help and participation!
Before you go any further, take a couple of minutes from your day, turn up your volume and
enjoy this soothing and uplifting song by Louis Armstrong.
This site is dedicated to Polio Survivors in the 21st Century along with their family, friends and the medical community. We need to pull together and share our experiences and knowledge about post-polio. This webpage will try to provide access to reliable, up to date resources.
Here it is August 2011 and I am guilty of having not updated in a good while due to my own physical and mental health issues. I have been searching all over the internet to find reliable sources to help us answer many of the questions arising we get older. One of the problems I see, there are far too many Polio Support Forums, Groups, etc not kept up to date and it is "splintering" our community. It is as though we need two or three really good organizations we can go to where we can all communicate and interact. Where we can ask questions regarding medical breakthroughs, assistive devices to make our lives easier, and financial support. This may seem off the wall but it would be cool to know of assistive living facilities for polio survivors that can help provide our special needs when the need arises. This is especially true for those of us who are single and may not have family to help care for us.
I will keep this page up for as long as I can but PLEASE if you know of anyone in the medical profession, organizations, individuals etc who can help inform us I hope you will send those links to me for this page. It will help others save time trying to find the much needed assistance we all need or will need. We need to help each other for we are a very "special group" of people and I am proud to be part of that community.
For this site I have chosen to be an affiliate to The March of Dimes and you will find their banners and other requests for donations on almost every page. I and other survivors owe a great deal to the organization, please give if you can.
Added December 29, 2011
I have recently found a site that has been of the greatest support of any I have found.
The Post-Polio Institute and
International Centre for Polio Education
I have been VERY fortunate to communicate directly with Dr. Richard L. Bruno. He has never failed to answer any of my emails. His website states,
"For almost thirty years, Dr. Richard L. Bruno has studied and treated nearly 6,000 polio survivors and is the world's leading expert on Post-Polio Sequelae (PPS)."
Without Dr. Bruno I don't know what I would have done these last few months. I have seen doctor after doctor and none has appeared to have knowledge of the residuals of polio and seem at a lost of words when I talk to them about my symptoms. One recent neurologist kept saying to me over and over again, "You DON'T have polio and there is no treatment for you!" I told him I understood I do not have polio but was conferring with him regarding the residuals. My over-all muscle and mental fatigue. We actually began yelling at each other until I finally said, "I don't think you are the doctor for me." and he responded, "I don't think so either."
Thanks to Dr. Bruno's advise I am now making changes to my home, filing for LTD from my job of 32 years and hopefully get accepted for SSDI. I thought I fought a battle growing up with the residuals of polio but now.....I'm fighting to keep and maintain the strength I have left. I told my boss, "There was a time I put my job and the organization first, but now......it is time I put James Davis first."
My new battle has just started but having Dr. Bruno has given me hope and I no longer feel lost and alone in this battle to keep my independence.
Two people are my hero's when it comes to polio and that is Franklin D. Roosevelt and Dr. Richard Bruno. To all of you who feel you have no one, believe me, you do. It will take alot of research to find the help you need but believe me it is out there and I promise as time goes by I will share my own experience with you in the hope it will help you maintain your independence.
Sincerely and Respectfully,
James
PS: I would strongly recommend Dr. Bruno's book, " The Polio Paradox" to polio survivors and or people who have family members or friends who were affected by one of the three types of polio. Medical professionals should read this book to give them a better understanding of this virus and how to treat baby boomers. Unfortunately the book is somewhat expensive but the hardback I have is very well made. I still have not completed the book but am learning alot from the chapters I have read. Click the book below to see more at Amazon dot com for more detail. You can purchase either the hardback or paperback books.....
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This site is constantly updated and appears to have many members....including me!
HIGHLY RECOMMENDED for all Polio Survivors!
This link updated on August 22, 2011.
PolioToday.org is published by the Salk Institute for Biological Studies. The website is designed to raise awareness of post-polio syndrome and to be a resource for polio survivors. Dr. Jonas Salk, who developed the first safe and effective polio vaccine, founded the Salk Institute in 1960.
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If you know of more sites like Polio Today please let me know so I can share the link with all Survivors.
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Polio Survivors of Montana
Note: Not only for folks in Montana but I think this could be helpful to ALL Polio Survivors
Tips for Polio Survivors from Dr. Richard Bruno
This section added October 29, 2011
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Disabilities-R-Us, an online chat room and support group created by and for people with physical disabilities (but everyone is welcome).
For over 10 years we have been providing a warm and friendly place where you can make new online friends from all over the world.
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In the United States, polio was the most notorious disease of the 20th century until AIDS appeared. On April 12, 1955, it was announced that Jonas Salk, using March of Dimes donations from millions of people, had developed a vaccine to prevent polio.
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THANKS FOR STOPPING BY!
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Sorry, I just discovered an error in my email address and it has been corrected.
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